IC Awareness Month – Day One, IC and Me

It has been brought to my attention that September is Interstitial Cystitis (IC) Awareness Month. And, as it is my first September since being officially diagnosed (but not my first September with it, for sure), I am going to be partaking in what is labeled across social media as the IC Awareness Photo Challenge here in my blog alongside words. Cuz I like words. Words are my bag. Photos speak volumes, but words speak louder. And words can help you understand. If I just posted a photo, what the hell would that do? “Oh, look, Devon has a handful of pills…wonder what that’s about?” See, you need words.

Each day this month, I am going to post a photo and write a little something about IC and how I live my life with it. I hope to educate you about IC and show you a little glimpse into everyday life. I am an open book, so feel free to ask me any questions as the days pass, and I will try to answer them to the best of my abilities. 🙂 This’ll be fun!!

Day One’s challenge topic is “IC and Me.” I don’t want to show all my cards on day one and totally blow the month topic-wise, so I will keep this brief.

IC has been one of the most challenging things I have ever dealt with – and will continue to deal with every day for the rest of my life or until there is a cure. IC was something I didn’t even know someone could get until I was diagnosed, but I knew I had something going on even before I heard the doctor say it. Living with it provides me with ample opportunities to overcoming challenges, from bloating so bad I look quite pregnant to various levels of pain, sexual dysfunction to feeling mentally dispirited, overwhelmed, and exhausted. And it is exhausting. Oh, friends, so exhausting.

Some days, I feel like a thousand bucks (I can’t say million cuz it’s been a while), and other days, I understand why people take their own lives over this disorder. When I am in a flare up for days on end with no end in sight, debilitating pain threatens my very sanity. When I have control over my symptoms (even briefly), I get those glimpses of how I felt before all of this. And in those moments I have hope that they’ll last. They never do. Not even for a little bit.

IC and Me is exactly what I hope to encapsulate for the next thirty days. So, stick around. Join me in this journey. I look forward to walking with you…

IC and Me day one

Day One: IC and Me – the supplements (and Advil) I currently take to help ease pain, bloating, and other symptoms of Interstitial Cystitis every morning with my breakfast. Can’t take a multi – they contain triggers. What’s a trigger?
We’ll get to that this month!
Stick around.

 

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